In deze (groeiende) blogpost maak ik een overzicht welke teksten en andere inhoud er online te vinden is op het gebied van Mad Studies.
Mad Studies is naast een academische discipline ook een sociale beweging. Stichting Perceval heeft een bibliotheek in Amsterdam, om Mad Studies toegankelijk te maken.
Daarnaast wil stichting Perceval Mad Studies-kennis toegankelijk maken, ook voor mensen die geen toegang hebben tot een (digitale) universiteitsbibliotheek en mensen met een krappe beurs. Wij mogen echter geen artikelen en boeken op deze website digitaal delen waarop auteursrechten rusten.
Help mee deze blogpost uitgebreider te maken, door literatuur die gratis beschikbaar is te mailen naar grietje.keller@madstudies.nl of te vermelden in de ‘comments’ van deze blog. Onder aan de post kun je bij de updates zien wat ik heb toegevoegd op welke datum.
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- Chamberlin, J. (1990). The ex-patients’ movement: Where we’ve been and where we’re going. The Journal of Mind and Behaviour, 11, 323-336
- Fernando, Shuman (1992). Roots of Racism in Western Psychiatry. In: OpenMind 59, oktober-november.
- Michael L. Perlin (1993) On Sanism, 46 SMU Law Reviw. 373 (1993)
http://scholar.smu.edu/smulr/vol46/iss2/4 - O’Hagan, M. (1993). Stopover on My Way Home from Mars: A Journey into the Psychiatric Survivor Movement in the USA, Britain, and the Netherlands
- Emerick, Robert E. (1996). Mad Liberation: The Sociology of Knowledge and the Ultimate Civil Rights Movement. The Journal of Mind and Behaviour, Spring 1996, Volume 17, Number 2 Pages 135-160
- Shimrat, Irit (1997). Call Me Crazy: Stories from the Mad Movement. Vancouver: Press Gang Publishing.
- Jackson, V (2001). In Our Own Voice: African-American Stories of Oppression, Survival and Recovery in Mental Health Systems. Massachusetts: National Empowerment Center.
- Ingram, Richard (2005). Troubled Being and Being Troubled: Subjectivity in the light of problems of the mind. Phd thesis, University of British Columbia. [Available for free download at https://circle.ubc.ca › ubc_2005-104058]
- Lewis, B. (2006). A Mad Fight: Psychiatry and Disability Activism. In Lennard J. Davis (ed.), The Disability Studies Reader, pp. 339-352.
Chapter in Davis_eds_2006 The disability studies reader - Fabris, Erick (2006). Identity, Inmates, Insight, Capacity, Consent, Coercion: Chemical Incarceration in Psychiatric Survivor Experiences of Community Treatment Orders. Ma Thesis, University of Toronto.
- Fernando, S. (2006) Stigma, Racism and power. Aotearoa Ethnic Network Journal 1 (1).
- Mens – Verhulst, Janneke (2007). Intersectionaliteit in vijf veronderstellingen.
- Ingram, Richard (2008). From the Mad Movement to Mad Studies.
- Boundy, Kathryn (2008). Are You Sure, Sweetheart, That You Want to Be Well?’ An Exploration Of The Neurodiversity Movement. Radical Psychology, vol. 7.
- Kalathil J (2009). Dancing to our own Tunes: Reassessing Black and Minority Ethnic Mental Health Service User Involvement. London: NSUN. [Reviewed and reprinted in 2011, reprinted again in 2013]
- Trivedi, Premila (2010). A Recovery Approach in Mental Health Services: Transformation, Tokenism or Tyranny? In Thurstine Basset and Theo Stickley (eds.), Voices of Experience: Narratives of Mental Health Survivors. John Wiley & Sons.
- Martin, Emily (2010). “Self-Making and the Brain.” Subjectivity 3, no. 4.
- Kalathil, Jayasree (2010). Beyond Tokenism: Participation of Mental Health Service Users from Racialised Groups in Mainstream User Involvement Initiatives. In: Agenda, issue 34.
- De Freitas, C. (2011). Participation in Mental Health Care by Ethnic Minority Users: Case studies from Netherlands and Brazil. Self-published PhD Thesis
- Ingram, Richard (mei 2011). Sanism in Theory and Practice (PDF). Second Annual Critical Inquiries Workshop. Vancouver, Canada: Centre for the Study of Gender, Social Inequities and Mental Health. Simon Fraser University.
- Price. Margaret (2011). It shouldn’t be so hard. Inside Higher Education. February 7.
- Price, Margaret (2011). “Cripping Revolution: A Crazed Essay.” Plenary. Society for Disability Studies. San Jose, CA. June 18, 2011 (includes race and LGBT)
- Kalathil, J, Collier, B, Bhakta, R, Daniel, O, Joseph, D and Trivedi, P (2011) Recovery and Resilience: African, African Caribbean and South Asian Women’s Narratives of Recovering from Mental Distress. London: Mental Health Foundation and Survivor Research.
- Lucy Costa, Jijian Voronka, Danielle Landry, Jenna Reid, Becky Mcfarlane, David Reville, Kathryn Church (2012), “Recovering our Stories”: A Small Act of Resistance. In Studies in Social Justice, Vol 6, No 1.
- Daley, Andrea, Lucy Costa & Lori Ross (2012). ‘(W)righting women: constructionsof gender, sexuality and race in the psychiatric chart‘. In: Culture, Health & Sexuality: AnInternational Journal for Research,Intervention and Care. DOI:10.1080/13691058.2012.712718
- Robert Menzies, Brenda A. LeFrançois, and Geoffrey Reaume (2013). Introducing Mad Studies. In: “Mad Matters, A Critical Reader in Canadian Mad Studies.” Toronto: Canadian Scholar’s Press.
- Price, Margaret (2013). “Annotation of ‘Mental Illness and Leadership.’” Bio/politics.
- Beijers, Huub en Saïda el Arbaji (2013). Welke afkomt je hebt zegt mijn helemaal niets. Overwegingen bij een onderzoek naar ervaringen van Marokkaanse jonge mannen met uitsluiting. Republiek Allochtonië.
- Gorman, Rachel, annu saini, Louise Tam, Onyinyechukwu Udegbe & Onar Usar (2013). Mad People of Color, A Manifesto. In: Asylum. Vol. Winter, p. 27.
- Christine Kelly (2013). ‘Towards renewed descriptions of Canadian disability movements: Disability activism outside of the non-profit sector’, Canadian Journal of Disability Studies. Vol 2, no 1.
- Wolframe, PhebeAnn (2013). “The Madwoman in the Academy, or, Revealing the Invisible Straightjacket: Theorizing and Teaching Saneism and Sane Privilege” in Disability Studies Quarterly. DOI: http://dx.doi.org/10.18061/dsq.v33i1
- Costa, Lucy (2014). Mad Studies – what it is and why you should care. CS/info Centre Bulletin.
- Kumsa, Martha Kuwee , Magnus Mfoafo-M’Carthy, Funke Oba, Sadia Gaasim (2014). The Contours of Anti-Black Racism: Engaging Anti-Oppression from Embodied Spaces. In: Journal of Critical Anti-Oppressive Social Inquiry. 1, no. 1.
- Pan African Network of People with Psychosocial Disabilities (PANUSP) (2014). Voices from the field: The Cape Town Declaration (16th October 2011). In: Disability and the Global South, 2014 Vol.1, No. 2, 385-386 ISSN 2050-7364 www.dgsjournal.org
- Diana Rose (2014) The mainstreaming of recovery, Journal of Mental Health, 23:5, 217-218, DOI: 10.3109/09638237.2014.928406.
- Gillis, Alex (2015). The rise of Mad Studies. A new academic discipline challenges our ideas of what it means to be “sane.” In: University Affairs, 3 november 2015.
- Graby, Steven (2015) Neurodiversity: bridging the gap between the Disabled People’s Movement and the Mental Health System Survivors’ Movement? Lezing op symposium Mad Studies and Neurodiverisyt – exploring connections, Lancaster University, 17 juni 2015.
- Kalathil, Jayasree and Alison Faulkner (2015). ‘Racialisation and knowledge production: A critique of the report ‘Understanding Psychosis and Schizophrenia’.’ In: Mental Health Today Jan-Feb 2015, 22-23
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Beaupert, Fleur. “Silencing Prote(x)t: Disrupting the Scripts of Mental Health Law.” University of New South Wales Law Journal Issue: 3, no. Volume: 41 (2015): 746.
- Kroet, Annemarie (2015). De luizenervaring van een ervaringsdeskundige. Sociale Vraagstukken, 14 november 2015
- McWade, Damian Milton & Peter Beresford (2015). Mad studies and neurodiversity: a dialogue. Disability & Society 17 February 2015.
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Beresford, Peter. “From Psycho-Politics to Mad Studies: Learning from the Legacy of Peter Sedgwick.” Critical and Radical Social Work Volume 4, Number 3 (November 2016): 343-355(13). https://doi.org/info:doi/10.1332/204986016X14651166264237.
http://www.ingentaconnect.com/content/tpp/crsw/2016/00000004/00000003/art00004
- Beresford, P., & Russo, J. (2016). Supporting the sustainability of Mad Studies and preventing its co-option. Disability & Society, 7599 (February), 1–5.
- LeFrancois, Brenda (2016). Foreword to `Searching for a Rose Garden: Challenging Psychiatry, Fostering Mad Studies’, edited by Jasna Russo & Angela Sweeney. Ross-on-Wye: PCCS Books.
- Hedva, Johanna (2016), Sick Woman Theory. Mask Magazine, January.
- Hedva, Johanna (2016), In defense of De-Persons. Guts Magazine, May
- Altman DuBrul, Sacha (2016). Underground Transmissions and Centering the Marginalized: Collaborative Strategies For Re-Visioning the Public Mental Health System. Final paper for the Silberman School of Social Work at Hunter College
- Mark Cresswell and Helen Spandler (2016). Solidarities and Tensions in Mental Health Politics: Mad Studies and Psychopolitics. Critical and Radical Social Work 2016: 4(3)
- Ingram, Richard A.. Doing Mad Studies: Making (Non)sense Together. Intersectionalities. A Global Journal of Social Work Analysis, Research, Polity, and Practice, vol 5, no 3 (2016). Special Issue: Mad Studies: Intersections with Disability Studies, Social Work, and ‘Mental Health’.
- Kusters, Wouter (2016). Filosofie en waanzin: Kristalreceptuur: naar een ommekeer van de natuurlijke levenhouding. Tijdschrift voor Filosofie, vol 78, Issue 1, pp 3-31. DOI: 10.2143/TVF.78.1.3157073
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Jayasree Kalathil and Nev Jones (2016). Unsettling disciplines: Madness, identity, research, knowledge. In: Philosophy, Psychiatry and Psychology, Volume 23, Issue 3-4, Sept-Dec 2016, pages 183-188
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Jijian Voronka (2016). The Politics of ‘people with lived experience’ Experiential Authority and the Risks of Strategic Essentialism. In: Philosophy, Psychiatry, & Psychology, Volume 23, Number 3/4, September/December, pp. 189-201 https://doi.org/10.1353/ppp.2016.0017
- Jijian Voronka (2017). Turning Mad Knowledge into Affective Labor: The Case of the Peer Support Worker. American Quarterly, Volume 69, Number 2, June, pp. 333-338. Johns Hopkins University Press. DOI: https://doi.org/10.1353/aq.2017.0029.
- Rosalie Ekstein (2017). Omvormingen van het sociaal contract. De Wajonger als te disciplineren subject. Bachelor scriptie, Erasmus Universiteit Rotterdam.
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Margaret Price, Mark S. Salzer, Amber O’Shea, Stephanie L. Kerschbaum (2017). Disclosure of Mental Disability by College and University Faculty: The Negotiation of Accommodations, Supports, and Barriers. Disability Studies Quarterly. Vol 37, no 2.
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Julie Elizabeth (2017). A Critical Essay: The Marginalization of Madness.
- Hussein A. Bulhan. Psychology in the metacolony. In: Mail & Guardian, 29 september 2017.
- Barrelblog10. “Nothing about us, without us”. Notes towards a draft manifesto for survivor-led emancipatory research. Blogpost on: Barrelblog, Diogonesquely does it. February 8th, 2018
- Richard Saville-Smith (2018). Reason versus Madness – a dehumanising dichotomy. Presentation at conference The Inhuman Gaze – Paris 6th
-9th June 2018
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Brosnan, Liz. “Who’s Talking About Us Without Us? A Survivor Research Interjection into an Academic Psychiatry Debate on Compulsory Community Treatment Orders in Ireland.” Laws 7, no. 4 (September 25, 2018): 33. https://doi.org/10.3390/laws7040033.
- Diana Rose. Participatory research: real or imagined. Soc Psychiatry Psychiatr Epidemiol (2018). https://doi.org/10.1007/s00127-018-1549-3
- Laura Yakas. Tackling Timelessness. Anthropology News. November 2018
- Damian Milton ‘Here comes trouble’: autism and gender performance. In: Gendering Autism, 12 Feb 2018, Strathclyde, UK. (Unpublished, PowerPoint) (KAR id:66024) https://kar.kent.ac.uk/66024/
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- Stefan, Hayley C. “A (Head) Case for a Mad Humanities: Sula’s Shadrack and Black Madness.” Disability Studies Quarterly 38, no. 4 (December 21, 2018). https://doi.org/10.18061/dsq.v38i4.6378.
- Jijian Voronka (2019): The mental health peer worker as informant: performing authenticity and the paradoxes of passing, Disability & Society, DOI: 10.1080/09687599.2018.1545113
- Anne Marsman (2021): Beyond dis-ease and dis-order. Proefschrift Universiteit Maastricht.
Tijdschriften en tijdschriften specials
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- Deviant, tijdschrift tussen psychiatrie en maatschappij.
- The politics of Resilience and Recovery in Mental Health Care. Speciaal nummer van Studies in Social Justice. Vol 6, No 1 (2012). Guest Editors: Alison Howell and Jijian Voronka.
- Intersectionalities. A Global Journal of Social Work Analysis, Research, Polity, and Practice, vol 5, no 3 (2016). Special Issue: Mad Studies: Intersections with Disability Studies, Social Work, and ‘Mental Health’.
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Canadian Journal of Disability Studies Special Issue: Institutional Survivorship. Vol 6, No 3 (2017)
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Video’s
- Making Mad Studies: Process, practice and contestations – April 29 2015. Moderator: Dr Denise O’Neil Green. Panelist:Dr. Kathryn Church (Professor and Director, School of Disability Studies), Dr. Jennifer Poole (Professor, School of Social Work), Jijian Voronka (Instructor, School of Disability Studies)
- Dr. Bonnie Burstow. Psychiatry and the Business of Madness. A Toronto Public Library Talk, Dec 6, 2016
Cursussen
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- Mad Studies Netwerk, a collection of resources and posts bringing together an international network of mad studies endeavours.
- Mad Studies Facebook group (closed group)
- Mildly Dysthymic in America
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UPDATES:
Toegevoegd 2016: 9 oktober: Fabris, Erick (2006), O’Hagan, M. (1993). 11 oktober: Shimrat, Irit (1997). 14 oktober: Cresswell & Spandler (2016), Hedva (2016). 20 oktober: Trivedi (2010), Diana Rose (2014). 21 oktober: Kusters (2016). 12 november: Lewis (2006).
2017: 1 januari: Intersectionalities, special issue; Inquiry into the ‘schizophrenia’ label; Kelly (2013); 12 maart: Perlin (1993); 16 juni: website Critical Suicidology; 30 augustus: Canadian Journal of Disability Studies Special Issue: Institutional Survivorship. 17 september: Rosalie Ekstein (2017). 22 september: Voronka (2017). 9 oktober: Altman DuBrul (2016). 15 oktober: Kalathil and Jones (2016). 20 oktober: Price and others (2017). 10 december: Jijian Voronka (2016); 12 december: Julie Elizabeth (2017).
2018: 13 februari: Barrelblog (2018); 8 februari: Mildly Dysthymic in America (2018), Hussein A. Bulhan (2017), 10 juni: Richard Saville-Smith (2018), 30 juni: Diana Rose (2018), 4 augustus: Peter Beresford (2016), 11 oktober: Brosnan (2018), Beaupert (2015). 30 december: Hayley (2018).
2019: 18 januari: Yakas (2018), Voronka (2019)
2021 november: Marsman (2021), december: Milton (2018).
2023 september: Ingram (2016)
Is there any real video materiaal about this to het a vishal idea about it?
Hoi Constantijn, I do not understand your question. Ik begrijp je vraag niet helemaal.
Hai Grietje,
Zojuist heb ik dit stuk van Richard A. Ingram gelezen over het coinen van het begrip ‘Mad Studies.’ Misschien kan het toegevoegd worden aan bovenstaande blogpost.
https://web.archive.org/web/20180226164000/http://journals.library.mun.ca/ojs/index.php/IJ/article/view/1680/1327